Skip to main content
Guidance

Lynch Syndrome

A collection of resources for our NHS Bowel Cancer Screening for patients with Lynch Syndrome.

Updates to this page

From:
NHS England
Published:
14 March 2023
Last updated:
6 November 2025
Show all updates

  1. Updated the 'heaving bleeding needing a transfusion' statistic in the 'Helping you decide' leaflet, section 14. Changed from 'around 1 person in 2,400' to 'around 1 person in 2,500'.

  2. Amended formatting of translations

  3. Updating translations with translated versions of line 'Occasionally a general anaesthetic may be considered in specific situations'.

  4. Amended text in '8. How the NHS bowel cancer screening programme works'. Initially appeared as 'If we do not think you are fit enough for the examination, we may offer you a colonoscopy under general anaesthetic. Needs to be relaced with the below.' This was replaced with the following: 'You are usually awake during a colonoscopy. You can choose to have: - painkillers - gas and air - sedation – medicine given through a small tube (cannula) in your arm. Occasionally a general anaesthetic may be considered in specific situations. Some hospitals may not offer all these options.' Uploaded new PDF with above change plus updated colour scheme, final page, etc.

  5. A British Sign Language (BSL) version of the video has been added

  6. Added translation

  7. Added translations and a HTML version of the Helping you decide leaflet

  8. Added translation

Applies to England

Documents

Standard English Lynch Syndrome 'helping you decide' leaflet

PDF, 146 KB, 16 pages

This file may not be suitable for users of assistive technology.

Request an accessible format
If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

Helping you decide leaflet

HTML

Easy Read - Bowel cancer screening: colonoscopies for people with Lynch Syndrome

PDF, 4.36 MB, 22 pages

This file may not be suitable for users of assistive technology.

Request an accessible format
If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email england.contactus@nhs.net. Please tell us what format you need. It will help us if you say what assistive technology you use.

British Sign Language (BSL) Lynch Syndrome helping you to decide leaflet

https://www.youtube.com/watch?v=oHagOjzNoNI

Details

This is where we host our information about Lynch Syndrome. We’ve translated our ‘Helping you decide’ leaflet into the some of the most commonly spoken languages in the country, you can view the text in alternate languages by clicking on the language of your choice in the top right of the page.

If you’d like to view our British Sign Language (BSL) version of our helping you to decide leaflet, you can view it below:

Bowel cancer screening for patients with Lynch syndrome

Sign up for emails or print this page