Closed consultation

Improving the experiences of people with ME/CFS: interim delivery plan

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We're seeking your views on an interim delivery plan to improve the experiences and outcomes of people with myalgic encephalomyelitis/chronic fatigue syndrome.

This consultation ran from

Consultation description

The consultation asks for your views on specific chapters and actions on:

  • research
  • attitudes and education
  • living with ME/CFS
  • language used in relation to ME/CFS

We’ll use the responses to help us understand:

  • how well the plan identifies and addresses the issues most important to the ME/CFS community
  • where further action may be required


Published 9 August 2023
Last updated 4 September 2023 + show all updates
  1. Added a link to the easy read version of the consultation.

  2. Added the survey in PDF format, for users who prefer to print it, complete a paper version and post it to us.

  3. First published.