Our plan to improve the lives of people with ME/CFS (easy read)
Read the full outcome
Detail of outcome
In 2023, we shared our plan for improving the lives of people with myalgic encephalomyelitis and chronic fatigue syndrome (ME/CFS).
We shared a survey which asked people what they thought of our plan. This booklet will explain what we learned from people’s survey answers.
We want to share the final version of our plan by the end of June 2025.
Detail of feedback received
Thank you for telling us what you think about our plan to improve the lives of people with ME/CFS.
3,338 people answered the questions in our survey and we received 244 responses to the easy read consultation. Most of these were from people who said they have, or think they have, ME/CFS.
Original consultation
Consultation description
We would like to know what you think of our plan. This will help us know if our plan includes the most important things for people with ME/CFS and how to make our plan better in the future.
Follow the ‘Respond online’ link in the ‘Ways to respond’ box below to tell us your ideas.
Or you can print and post this document with your answers to:
ME/CFS interim delivery plan
Department of Health and Social Care
39 Victoria Street
London
SW1H 0EU
You can read more in the non-easy read version.
Documents
Updates to this page
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Added 'Improving the lives of people with ME/CFS: what we found out from our survey'.
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Added call-out box with link to non-easy read outcome. The easy read version will be published soon.
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Added a summary of responses to the consultation.
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First published.