Rare Diseases: UK Framework
Information about the UK Rare Diseases Framework.
UK Rare Diseases Framework
The UK Rare Diseases Framework was created in 2021. It lists the priorities and underlying strategic themes that detail how the UK will address the challenges faced by those living with rare diseases.
Action plans
Nation-specific action plans have been developed detailing the steps each administration is taking to meet the shared priorities of the framework.
England releases a rare diseases action plan annually. The other UK nations produced rare diseases action plans following the release of the framework.
Devolved governments action plans
Scotland rare diseases action plan: progress report 2024
Scotland rare diseases action plan 2022
Wales rare diseases action plan 2021 to 2026
Wales rare diseases action plan documents
Northern Ireland rare diseases action plan 2022 to 2023 and progress reports