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Guidance

Congenital Diaphragmatic Hernia: information for parents

This leaflet can help healthcare professionals speak with people, following suspected or confirmed diagnosis of congenital diaphragmatic hernia (CDH).

Updates to this page

From:
NHS England
Published:
1 April 2012
Last updated:
6 March 2026
Show all updates

  1. Removed reference to printing leaflets. Added information on requesting other formats.

  2. Added list of translations to the details. Added link to guidance on printing leaflets.

  3. Adding translations for Arabic, Bengali, Chinese, Gujarati, Polish, Portuguese, Punjabi, Romanian, Spanish and Urdu.

  4. Changed lead organisation to NHS England. Removed references to PHE.

  5. Replaced PDF with an updated HTML document.

  6. Updated patient information leaflet.

  7. First published.

Applies to England

Documents

Congenital diaphragmatic hernia: information for parents

HTML

Details

This publication explains the condition congenital diaphragmatic hernia, identified by the fetal anomaly ultrasound scan.

The document includes information about:

  • what the condition is
  • how common it is
  • how it is diagnosed and confirmed
  • what treatment is available
  • what the outlook for the baby is
  • what happens next
  • how likely it is to happen in future pregnancy
  • where more support and information is available

The information is available in 10 other languages: Arabic, Bengali, Chinese, Gujarati, Polish, Portuguese, Punjabi, Romanian, Spanish, and Urdu.

To request another format, you can phone 0300 311 22 33 or email england.contactus@nhs.net.

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