Guidance

Spinal muscular atrophy type 1: NCARDRS data briefing

National data on the prevalence of spinal muscular atrophy type 1 (SMA1) from the National Congenital Anomaly and Rare Disease Registration Service.

Documents

Details

This report contains data on the incidence of spinal muscular atrophy type 1 (SMA1) based on Hospital Episode Statistics (HES), Office of National Statistics (ONS) mortality data and patient data held by the NCARDRS.

Appendix 1 provides further information on the background to this work and technical notes on the methods used.

Published 4 September 2019