Collection

National Congenital Anomaly and Rare Disease Registration Service

NCARDRS records those people with congenital abnormalities and rare diseases across the whole of England.

In response to the Zika outbreak, NCARDRS has launched a separate pathway for Zika associated congenital anomaly syndrome.

Send notifications of cases of suspected or confirmed Zika associated congenital anomalies to PHE.ZikaNCARDRS@nhs.net by secure NHS email.

Contact your regional office with any queries.

About the registry service

Data collection

  1. NCARDRS: antenatal data collection

    • Form
  2. NCARDRS: delivery data collection

    • Form
  3. NCARDRS: postnatal data collection

    • Form

Annual reports

  1. NCARDRS congenital anomaly statistics: annual data

    • Research and analysis
Published 27 March 2015
Last updated 20 July 2017 + show all updates
  1. Added 'NCARDRS congenital anomaly: annual data'.
  2. Added data collection forms.
  3. First published.