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National Congenital Anomaly and Rare Disease Registration Service: patient leaflet

What NCARDRS does, the benefits of registering, and how we look after your information.

Documents

The National Congenital Anomaly and Rare Disease Registration Service: what it is, the benefits and your options

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Details

This leaflet is for GPs and clinicians to use when speaking to parents whose baby has a congenital anomaly or rare disease.

GPs and clinicians can contact the regional offices for printed copies of this leaflet.

Published 1 July 2015
Last updated 14 February 2019 + show all updates
  1. Added updated patient leaflet.

  2. Updated National Congenital Anomaly Rare Disease Registration Service leaflet.

  3. First published.