Health protection – collection

HIV: surveillance, data and management

The surveillance and epidemiology of human immunodeficiency virus (HIV).

HIV is associated with significant mortality, serious morbidity and high costs of treatment and care. Around 100,000 people are living with HIV infection (diagnosed and undiagnosed) in the UK. The infection is still frequently regarded as stigmatising and has a prolonged ‘silent’ period during which it often remains undiagnosed.

Anti-retroviral therapy (ART) has resulted in substantial reductions in acquired immunodeficiency syndrome (AIDS) and deaths in the UK. People diagnosed promptly with HIV and started ART early can expect near normal life expectancy. Challenges remain, with high rates of late HIV diagnoses and an ageing population.

Further information on HIV is available on NHS Choices.

Data collection

PHE runs a number of HIV surveillance systems.

Protection of personal information and data.

  1. HIV surveillance systems

    • Detailed guide
  2. Sexual and reproductive health in England: local and national data

    • Guidance

Research and analysis

  1. HIV in the United Kingdom

    • Official Statistics