HIV: surveillance, data and management

The surveillance and epidemiology of human immunodeficiency virus (HIV).

HIV is associated with significant mortality, serious morbidity and high costs of treatment and care. Around 100,000 people are living with HIV infection (diagnosed and undiagnosed) in the UK.

The infection is still frequently regarded as stigmatising and has a prolonged ‘silent’ period during which it often remains undiagnosed.

Anti-retroviral therapy (ART) has resulted in substantial reductions in acquired immunodeficiency syndrome (AIDS) and deaths in the UK.

People diagnosed promptly with HIV and started ART early can expect near normal life expectancy. Challenges remain, with high rates of late HIV diagnoses and an ageing population.

Further information on HIV is available on NHS.UK.

Data collection

The UK Health Security Agency (UKHSA) runs a number of HIV surveillance systems.


National HIV prevention programme

UKHSA’s national HIV prevention programme comprises action to prevent HIV infection and transmission, through education and information, promoting safer sexual behaviour, facilitating access to HIV testing, increasing early diagnosis and treatment, and a pre-exposure prophylaxis (PrEP). The programme includes the following:

HIV Prevention England

HIV self-sampling service

HIV Prevention Innovation Fund 2015 to 2016

HIV Prevention Innovation Fund 2016 to 2017

National reports

Regional reports


Updates to this page

Published 31 July 2014
Last updated 12 January 2024 + show all updates
  1. Added 'HIV: positive voices survey' and 'HIV Action Plan monitoring and evaluation framework'.

  2. Added 'Sentinel surveillance of blood borne virus testing in England 2019'.

  3. Added link to the 'HIV: women in the UK' report under the national reports section.

  4. Added 'Annual Epidemiological Spotlight on HIV in the West Midlands: 2017 data'.

  5. New document added to collection: East Midlands HIV Spotlight report.

  6. Added 'National HIV self-sampling service' to the 'National HIV prevention programme' section.

  7. New report page added to collection: HIV: North East annual data spotlight

  8. Added ‘Sexual and reproductive health: Spend and Outcome Tool (SPOT)’ guidance under ‘Data collection’ section.

  9. Added 'HIV: North West annual data spotlight' under research and analysis.

  10. Added 'HIV: East of England annual data spotlight' under research and analysis section.

  11. Added 'HIV: South West annual data spotlight'.

  12. Added 2015 London data spotlight report.

  13. Added link to the ‘HIV testing in England: 2016 report’.

  14. Added HIV in South East England 2014 epidemiology spotlight.

  15. Added the guidance 'Sexual and reproductive health in England: a guide to local and national data'.

  16. First published.