Newborn outcomes project: data collection permission
Permission from the Confidentiality Advisory Group for newborn outcomes data collection: sickle cell and thalassaemia screening.
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This document is the formal approval from the Confidentiality Advisory Group. It gives permission to the the sickle cell and thalassaemia screening programme to collect named data to assess outcomes for babies and children under 5 with sickle cell disorders or thalassaemia.