Guidance

Newborn outcomes project: data collection permission

Permission from the Confidentiality Advisory Group for newborn outcomes data collection: sickle cell and thalassaemia screening.

Document

Permission from Confidentiality Advisory Group on newborn outcomes data from haemoglobinopathy screening

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Details

This document is the formal approval from the Confidentiality Advisory Group. It gives permission to the the sickle cell and thalassaemia screening programme to collect named data to assess outcomes for babies and children under 5 with sickle cell disorders or thalassaemia.

Published 24 November 2014