Guidance

Patient confidentiality in NHS population screening programmes

Information about what personally identifiable information is used by the screening programmes and why. Includes your options, your rights and how to find out more.

Documents

Details

This publication explains how and why population screening programmes collect and process data. It covers:

  • the information used by the NHS to invite people to be screened
  • the information used by Public Health England to ensure screening is safe and effective
  • the screening programmes and your rights
  • how long personally identifiable information is kept
  • how your information is protected and kept confidential
  • the information shared by Public Health England
  • population screening programmes and the law
  • how to find out more or raise a concern
Published 1 January 2015
Last updated 16 July 2018 + show all updates
  1. Added possibility of GPs sharing relevant information with screening services.
  2. New and expanded information to reflect the General Data Protection Regulation (GDPR).
  3. Guidance updated for accuracy and clarity.
  4. Added information about patient confidentiality processes in cancer screening.
  5. First published.