Congenital heart disease: information for parents

Information to help healthcare professionals speak with parents, following suspected or confirmed diagnosis of congenital heart disease.



This publication explains congenital heart disease, a condition screened for using an ultrasound scan as part of the NHS fetal anomaly screening programme (FASP).

The document explains:

  • what the condition is
  • how common it is
  • how it is diagnosed and confirmed
  • what treatment is available
  • what the outlook for the baby is
  • what happens next
  • how likely it is to happen in future pregnancy
  • where more support and information is available

Updates to this page

Published 1 April 2012
Last updated 9 March 2020 + show all updates
  1. Replaced PDF with an updated HTML document.

  2. Updated leaflet following a review.

  3. First published.

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