Guidance

Bilateral renal agenesis: information for parents

Information to help healthcare professionals speak with people, following suspected or confirmed diagnosis of bilateral renal agenesis.

• From: NHS England
• Published: 1 April 2012
• Last updated: 9 July 2026
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  1. 9 July 2026

     Added translations in 10 languages: Arabic, Bengali, Gujarati, Simplified Chinese, Polish, Portuguese, Spanish, Romanian, Punjabi and Urdu.

  2. 6 March 2026

     Added information on requesting other formats.

  3. 3 February 2025

     Changed lead organisation to NHS England. Removed references to PHE.

  4. 9 March 2020

     Replaced PDF with an HTML attachment.

  5. 1 April 2012

     First published.

Applies to England

Documents

Bilateral renal agenesis: information for parents

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Details

This publication explains the fetal anomaly condition bilateral renal agenesis.

The document includes information about:

• what the condition is
• how common it is
• how it is diagnosed and confirmed
• what treatment is available
• what the outlook for the baby is
• what happens next
• how likely it is to happen in future pregnancy
• where more support and information is available

The NHS fetal anomaly screening programme (FASP) tests for this condition.

To request another format, you can phone 0300 311 22 33 or email england.contactus@nhs.net.