Open consultation

Down Syndrome Act 2022 draft statutory guidance (easy read)

Applies to England

Summary

We want to hear what people think about our draft guidance on Down syndrome.

This consultation closes at

Consultation description

The Down Syndrome Act 2022 is a law to help make life better for people with Down syndrome and their families and carers. As part of the law, we have written some guidance. Guidance is like rules that services should follow.

The guidance says what services should do to support people with Down syndrome.

To help us write the draft guidance, we looked at what people told us in the call for evidence.

Until we decide on the final version of the guidance, it is called a ‘draft’. We want to know what you think about the draft guidance to help us decide on the final version.

We would like lots of people to answer our questions. This will help us to see if we have put the right things in the guidance and if anything needs to change.

The ‘Questions for professionals’ booklet is for people (and organisations) who work with people with Down syndrome, a similar condition and/or a learning disability.

How to send us your answers

You can answer:

  • for yourself
  • for someone else
  • for an organisation

Follow the ‘Respond online’ link in the ‘Ways to respond’ box below to tell us what you think about the draft guidance.

Or you can print and scan this document with your answers, then email it to ndldconsultation@dhsc.gov.uk.

You can also print and post this document with your answers to:

Neurodiversity, Disability and Learning Disability team
Department of Health and Social Care
Floor 3
39 Victoria Street
London
SW1H 0EU

We will publish BSL versions of the draft guidance and consultation soon.

You can read more in the non-easy read version.

Documents

Questions for professionals

Privacy notice (easy read)

Ways to respond

Updates to this page

Published 5 November 2025

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