Down Syndrome Act 2022 draft statutory guidance

From:: Department of Health and Social Care
Published: 5 November 2025

Applies to England

Summary

This consultation seeks views on the draft statutory guidance issued under the Down Syndrome Act 2022.

This consultation closes at
11:59pm on 28 January 2026

Consultation description

This consultation sets out what the Department of Health and Social Care is proposing for the statutory guidance issued under the Down Syndrome Act 2022.

We have considered public views in response to the Down Syndrome Act 2022 guidance: call for evidence regarding areas to include in the draft statutory guidance.

We would now like to invite people to take part in the full consultation to widely test the draft statutory guidance ahead of final publication.

We welcome responses from:

people with Down syndrome and their families and/or carers
people with other chromosomal conditions, genetic conditions and/or a learning disability who have similar needs (to note, this list is not exhaustive) and their families and/or carers
organisations
people who work in healthcare, social care, education or housing services

You can respond:

as an individual
on behalf of someone else
on behalf of an organisation

See the easy read version of the consultation for easy read versions of the:

online survey
draft guidance
privacy notice

BSL versions of the draft guidance and consultation will be published in due course.

Documents