Open consultation
Down Syndrome Act 2022 draft statutory guidance
Applies to England
Consultation description
This consultation sets out what the Department of Health and Social Care is proposing for the statutory guidance issued under the Down Syndrome Act 2022.
We have considered public views in response to the Down Syndrome Act 2022 guidance: call for evidence regarding areas to include in the draft statutory guidance.
We would now like to invite people to take part in the full consultation to widely test the draft statutory guidance ahead of final publication.
We welcome responses from:
- people with Down syndrome and their families and/or carers
- people with other chromosomal conditions, genetic conditions and/or a learning disability who have similar needs (to note, this list is not exhaustive) and their families and/or carers
- organisations
- people who work in healthcare, social care, education or housing services
You can respond:
- as an individual
- on behalf of someone else
- on behalf of an organisation
See the easy read and BSL versions of the consultation for easy read versions of the:
- online survey
- draft guidance
- privacy notice (in easy read only)
Documents
Ways to respond
Updates to this page
Published 5 November 2025
Last updated 24 December 2025
show all updates
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Updated to extend the closing date to 30 March 2026 and to add a link to the BSL version of this consultation.
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First published.