The UK strategy for rare diseases sets out a shared vision for improving the lives of all those with rare diseases in the UK by 2020. It makes 51 commitments in a number of different areas.
Each country in the UK will take action and develop plans to implement the strategy that best meets their own health and care systems, but will work together where it makes sense to do so.
Implementation in England
NHS England is responsible for implementing the rare disease commitments relevant to health care. They’re working closely with the Department of Health, National Institute for Health Research, Health Education England and other organisations to achieve commitments relevant to research and education.
Statement of intent
The statement of intent outlines how NHS England intends to achieve their commitments and how they will work with partners on all other commitments in the strategy.
Five-year forward view
NHS England’s five-year forward view, which sets out a vision for the future of the NHS, covers a number of issues that align closely with the UK strategy for rare diseases.