Guidance

Your baby carries a gene for sickle cell

Information for parents of babies who carry the sickle cell gene.

Documents

Details

Guidance for parents of babies found to carry the sickle cell gene following their newborn blood spot screening test.

This information is available in A4 PDF format (in English) to print out and provide for people who cannot access digital information. For more information, see the ‘order printed leaflets’ section of our guidance on how to access and order leaflets.

Translations are available in Bengali, French and Urdu. The Bengali translation can be found below the English version above. See the links in the top right of this page for the French and Urdu translations.

Contact the PHE Screening helpdesk with any queries about this publication, making sure you include its full title.

Updates to this page

Published 19 August 2020
Last updated 2 December 2021 + show all updates
  1. Added plain A4 PDF version for printing, to provide for people unable to access this information online.

  2. Added translations in Bengali, French and Urdu.

  3. First published.

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