Guidance

Sickle cell disease: report screening results to parents

This document sets out the process for reporting newborn sickle cell disease screening results to parents.

Document

Protocol for reporting newborn screening results for sickle cell disease to parents

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Details

This publication explains the procedures for informing parents about their baby’s sickle cell screening result.

It also includes:

  • guidelines for issuing laboratory reports of screening results
  • information about training for healthcare professionals
  • a draft letter for parents of babies who are reported as sickle cell carrier
Published 1 April 2012