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Sickle cell disease: managing the condition

This document sets out guidance for parents of children diagnosed with sickle cell disease.

Documents

A parent's guide to managing sickle cell disease (English)

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A parent's guide to managing sickle cell disease (Portugese)

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Detail

This document sets out advice for parents with a child diagnosed with sickle cell disease.

It includes information about:

  • what the condition is
  • the different types of sickle cell disease
  • the effects of sickle cell disease
  • procedures to keep the child well
  • common ailments for children with sickle cell disease
  • immunisations and medications for a child with the sickle cell disease
  • how to manage a child with sickle cell disease when away from home
  • advice on visiting the hospital outpatient clinic