Sickle cell and thalassaemia screening: outcome data collection template
- Public Health England
- Part of:
- Sickle cell and thalassaemia screening: data collection and Sickle cell and thalassaemia screening: commission and provide
- 31 March 2017
Template to record and submit newborn outcomes data for the sickle cell and thalassaemia (SCT) screening programme.
MS Excel Spreadsheet, 206KB
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The collection of SCT outcomes relies on data from screening laboratories and treatment services.
Healthcare professionals should use this form to record and submit data.
Download and complete the form to:
notify the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) of new babies, born in England with suspected sickle cell disease or thalassaemia
notify NCARDRS of children who present clinically
provide evidence that screen positive results have been given to parents
provide evidence of enrolment into care
provide clinical data
Please email the completed form to NCARDRS via email@example.com from an NHS.net email address.
If you have any queries or problems completing or returning the form please email firstname.lastname@example.org.
Published: 31 March 2017