Form

Notification of cystic fibrosis (CF) diagnosis not identified through screening

Form for notifying the newborn blood spot (NBS) screening programme of a cystic fibrosis (CF) diagnosis that was not detected by screening.

Documents

Notification of cystic fibrosis (CF) diagnosis for babies or children not identified through the newborn screening programme

This file may not be suitable for users of assistive technology. Request an accessible format.

If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email publications@phe.gov.uk. Please tell us what format you need. It will help us if you say what assistive technology you use.

Details

This form is for telling the newborn blood spot (NBS) screening programme about a diagnosis of cystic fibrosis (CF) that was not detected by screening.

The form has 2 sections for completion. Section a is information from the cystic fibrosis centre and section b is information from the screening laboratory. For section b, the clinical team and laboratory director should work together to gather the data.

The laboratory director should collate and anonymise the data by removing the greyed out fields in the document.

Published 1 May 2014
Last updated 22 August 2017 + show all updates
  1. Updated form.
  2. First published.