Notification of cystic fibrosis (CF) diagnosis not identified through screening

Form for notifying the newborn blood spot (NBS) screening programme of a cystic fibrosis (CF) diagnosis that was not detected by screening.


Notification of cystic fibrosis (CF) diagnosis for babies or children not identified through the newborn screening programme

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This form is for telling the newborn blood spot (NBS) screening programme about a diagnosis of cystic fibrosis (CF) that was not detected by screening.

The form has 2 sections for completion. Section a is information from the cystic fibrosis centre and section b is information from the screening laboratory. For section b, the clinical team and laboratory director should work together to gather the data.

The laboratory director should collate and anonymise the data by removing the greyed out fields in the document.

Published 1 May 2014
Last updated 22 August 2017 + show all updates
  1. Updated form.
  2. First published.