- Public Health England
- Part of:
- Newborn blood spot screening programme: supporting publications
- 1 May 2014
- Last updated:
- 22 August 2017, see all updates
Form for notifying the newborn blood spot (NBS) screening programme of a cystic fibrosis (CF) diagnosis that was not detected by screening.
Notification of cystic fibrosis (CF) diagnosis for babies or children not identified through the newborn screening programme
MS Word Document, 144KB
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This form is for telling the newborn blood spot (NBS) screening programme about a diagnosis of cystic fibrosis (CF) that was not detected by screening.
The form has 2 sections for completion. Section a is information from the cystic fibrosis centre and section b is information from the screening laboratory. For section b, the clinical team and laboratory director should work together to gather the data.
The laboratory director should collate and anonymise the data by removing the greyed out fields in the document.
Published: 1 May 2014
Updated: 22 August 2017
- Updated form.
- First published.