Support and training
Updated 6 July 2018
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This publication is available at https://www.gov.uk/government/publications/handbook-for-sickle-cell-and-thalassaemia-screening/support-and-training
NHS Sickle Cell and Thalassaemia (SCT) Screening Programme enquiries
Telephone: 020 3682 0890
Email: phe.screeninghelpdesk@nhs.net
Website: Programme overview
Information on all training resources and study days are available on GOV.UK.
Laboratory support service
The SCT programme funds a support service via Oxford University Hospitals for all professionals working in the antenatal and newborn screening programmes.
There is a designated telephone helpline and secure email address for questions about screening policy and haemoglobinopathy results.
Telephone: 01865 572 767
Email: lab.support@nhs.net
Fax: 01865 572 775
e-learning resource
The SCT screening e-learning resource has 9 units. Each unit can be completed independently. There is an optional quiz to test knowledge, with a certificate issued on satisfactory completion.
Counselling and competencies
See core competencies in genetics for SCT counselling.
External training courses and resources
Kings College London offers the following 3 courses:
- genetic risk assessment – a 4-day course for health professionals involved in counselling women and couples ‘at risk’ of having a child with a haemoglobinopathy
- specialist counsellors update – a one-day update for practitioners who have previously undertaken a specialist course
- SCT programme update – a one-day update for non- specialist nurses, midwives and health visitors so they can develop an understanding of the antenatal and newborn SCT screening programme in England