These reports published in 2016 highlight the outcomes achieved from a pilot to collect data for individuals by specialist palliative care services. It contains lessons learnt and makes recommendations for future improvements in palliative and end of life care.
This information is useful for policy makers, commissioners and service providers, to inform and guide future services.
The palliative care clinical data set: guidance and definitions supports the collection of data for patients. It specifies the conditions for data collection that enables systematic and standardised measurement, analysis and comparison of some of the outcomes that matter most to people who receive specialist palliative care. The guidance and definitions should be reviewed after the evaluation report to understand its context.