Research and analysis

Down syndrome needs profile paper

Evidence received on the potential needs of people with Down syndrome through a call for evidence on the Down Syndrome Act 2022 and engagement with academics.

From:
Department of Health and Social Care
Published
5 November 2025

Applies to England

Documents

Down syndrome needs profile paper

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Details

The aim of this paper is to categorise evidence on the potential needs of people with Down syndrome reported during the Down Syndrome Act 2022 guidance: call for evidence, in order to support the production of the Down Syndrome Act 2022 guidance.

This paper is for anyone interested in learning more about:

  • the potential needs of people with Down syndrome, and where these needs may overlap with the needs of people with other chromosomal conditions, genetic conditions and/or a learning disability
  • what evidence was collected during the call for evidence

It has been published alongside a further Down Syndrome Act 2022 statutory guidance consultation.

Updates to this page

Published 5 November 2025

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