Transparency data

UK NSC meeting agenda June 2025

Updated 7 August 2025

© Crown copyright 2025

This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk.

Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned.

This publication is available at https://www.gov.uk/government/publications/uk-nsc-meeting-june-2025/uk-nsc-meeting-agenda-june-2025

The 26 June 2025 agenda for the UK NSC meeting being held in Edinburgh and over Microsoft Teams is as follows:

  • introduction and apologies

  • call for new interests

  • minutes of the last meeting

  • matters arising – director’s update

    • commissioning routes

  • stakeholder activity

  • non-invasive prenatal testing (NIPT) presentation

  • spinal muscular atrophy (SMA) model update

  • Fetal Maternal Child Health (FMCH) Group

    • severe combined immunodeficiency (SCID) update

  • Adult Reference Group (ARG)

  • Research and Methodology Group (RMG)

  • any other business

    • urea cycle disorder
Back to top