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UK NSC BSTG projects: summary and status

Published 9 February 2026

Summary, status and linked publications of UK NSC BSTG projects.

Test accuracy

Evaluation of test accuracy studies in newborn blood spot screening and rare disease settings (Phase 1)

  • Status: complete

  • Publication: pending peer review

Evaluation of test accuracy studies in newborn blood spot screening and rare disease settings (Phase 2)

  • Status: ongoing

Screening outcomes

Methods and mechanisms for measuring and monitoring outcomes from newborn bloodspot screening: a scoping review (Phase 1)

Methods and mechanisms for measuring and monitoring outcomes from newborn bloodspot screening: the strengths and limitations of methods and mechanisms for evaluating the benefits and harms of newborn blood spot screening (Phase 2)

  • Status: ongoing

Decision analytic modelling

A scoping work exploring what type of model is suitable to support a newborn blood spot screening in-service evaluation for multiple conditions

  • Status: scoping

Methodological and Procedural Considerations for Developing Decision Analytic Models to Assess the Health Economic Impacts of Newborn Bloodspot Screening

Policy-making and implementation

Policy-making and implementation for newborn bloodspot screening in Europe: a comparison between EURORDIS principles and UK practice