Transparency data

UK NSC BSTG projects: summary and status

Updated 18 March 2026

© Crown copyright 2026

This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk.

Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned.

This publication is available at https://www.gov.uk/government/publications/uk-nsc-blood-spot-task-group-projects-and-outputs/uk-nsc-bstg-projects-summary-and-status

Summary, status and linked publications of UK NSC BSTG projects.

Test accuracy

Evaluation of test accuracy studies in newborn blood spot screening and rare disease settings (Phase 1)

  • Status: complete

  • Publication: pending peer review

Evaluation of test accuracy studies in newborn blood spot screening and rare disease settings (Phase 2)

  • Status: ongoing

  • Expected finish date: December 2026[footnote 1]

  • Supplier: Warwick-Birmingham Screening Evidence Synthesis Group (WeBS-ESG)

Screening outcomes

Methods and mechanisms for measuring and monitoring outcomes from newborn bloodspot screening: a scoping review (Phase 1)

Methods and mechanisms for measuring and monitoring outcomes from newborn bloodspot screening: the strengths and limitations of methods and mechanisms for evaluating the benefits and harms of newborn blood spot screening (Phase 2)

  • Status: ongoing

  • Expected finish date: December 2026[footnote 1]

  • Supplier: WeBS-ESG

Decision analytic modelling

A scoping work exploring what type of model is suitable to support a newborn blood spot screening in-service evaluation for multiple conditions

  • Status: scoping

Methodological and Procedural Considerations for Developing Decision Analytic Models to Assess the Health Economic Impacts of Newborn Bloodspot Screening

Policy-making and implementation

Policy-making and implementation for newborn bloodspot screening in Europe: a comparison between EURORDIS principles and UK practice

  1. Timescales indicative and may change. The expected finish date relates to the report being ready for the BSTG. Any potential peer review publication would be expected after the expected finish date. ↩ ↩2

Back to top