Transparency data

Blood Spot Task Group

Updated 14 January 2026

© Crown copyright 2026

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This publication is available at https://www.gov.uk/government/publications/uk-national-screening-committee-register-of-interests/blood-spot-task-group

This register lists declarations made by members in respect of interests they have that are relevant to the remit of the UK National Screening Committee’s (UK NSC’s) blood spot task group (BSTG). 

Dr David Elliman (chair) 

  • none

Dr Felicity Boardman

  • interests listed on FMCH register

Dr Jim Bonham

  • interests listed on FMCH register

Gina Brondel 

  • none 

Christine Cavanagh 

  • works for Genomics England on the Generation Study 

Dr Anupam Chakrapani 

  • none

Dr Llion Davies 

  • Grant funding – 4 Nations research LifeArc bid in relation to rare diseases data 

  • British Medical Association representative committee roles 

  • Faculty of Public Health committee role and deputy faculty advisor since September 2022

Jane Fisher

  • interests listed on FMCH register

Dr Sharon Hillier

  • interests listed on UK NSC register

Catherine Joynson 

  • member of Royal College of Physicians Committee on Ethical Issues in Medicine 2023 to 2027 (unpaid) 

  • Cardiff University MSc Genetic and Genomic Counselling 2023-2026, self-funded research on Fatherhood and Cystic Fibrosis 

Rachel Knowles 

  • part-time employee and Clinical Principal Research Fellow at University College London (UCL) 

  • part-time employee of the Medical Research Council (MRC) 

  • MRC / UK Research and Innovation (UKRI) – Associate Director for Clinical Research Policy, Ethics and Governance 

  • NHS England Specialist Professional and Clinical Advisor – Clinical Advisor to the Newborn Blood Spot Screening Programme 

  • unpaid member of the Confidentiality Advisory Group of the Health Research Authority

Dr Robin Lachmann

  • interests listed on FMCH register

Prof Mariska Leeflang 

  • none 

Dr Helen Lewis-Parmar 

  • none 

Prof Anneke Lucassen 

  • interests listed on UK NSC register 

Amy Jayne McKnight 

  • none 

Nick Meade 

  • CEO of Genetic Alliance UK, which received funding in 2024-25 from: Alexion, Amicus Therapeutics, BioCryst Pharmaceuticals, Biogen, Chiesi, Ipsen, Janssen, Jazz Pharmaceuticals, Johnson & Johnson, Kyowa Kirin, Novartis, Orchard Therapeutics, Pfizer, PTC Therapeutics, Roche, Sanofi, Takeda, UCB, Vertex, Genomics England, Robert Luff Foundation Trust, LifeArc, Inthallo, D’Oyly Carte Foundation, Department of Health and Social Care, Scottish Government 

Prof Stuart Moat 

  • Cardiff University honorary chair since 2018 

  • UK MRC Grant (MR/Y008057/1): Co PI Lipidomic and Metabolomics for rare disease diagnosis 

  • Waters: newborn blood spot (NBS) second tier test and diagnostic assay development, kits/reagents supplied free of charge to undertake work, publishes data 

  • Revvity: NBS assay development, kits/reagents supplied free of charge to undertake work, publishes data 

  • Illumina: advising on proteomic Diagnostic assay development – potential applications for newborn blood spot screening, publishes data 

Dr Heather Payne 

  • Trustee of Representative Body of the Church in Wales (since January 2025). Elected lay member, unpaid 

Liz Robinson 

  • none 

Dr Graham Shortland 

  • interests listed on  UK NSC register 

Susan Spillane 

  • none 

Sarah Stevens 

  • none 

Sian Taylor-Phillips 

  • interests listed on UK NSC register 

Dr Ellen Thomas 

  • works for Genomics England and is the Chief Investigator of the Generation Study 

Prof Rachael Wood 

  • interests listed on FMCH register
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