Guidance

Phenylketonuria (PKU): information for parents

Information for parents of babies with possible phenylketonuria (PKU) following a baby’s screening test result.

From:
Public Health England
Published
1 October 2010
Last updated
18 November 2021 — See all updates

Applies to England

Documents

Phenylketonuria (PKU): summary

HTML

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Phenylketonuria (PKU): summary (for print)

PDF, 214 KB, 3 pages

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Phenylketonuria (PKU): detailed information

HTML

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Phenylketonuria (PKU): detailed information (for print)

PDF, 129 KB, 4 pages

View online

This file may not be suitable for users of assistive technology.

Request an accessible format.
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Details

Information and advice for parents of babies with suspected PKU following newborn blood spot screening.

Healthcare professionals should use it to support them in their conversations with parents.

This information is available in A4 PDF format (in English) to print out and provide for people who cannot access digital information. For more information, see the ‘order printed leaflets’ section of our guidance on how to access and order leaflets.

Contact the screening helpdesk with any queries about this publication, making sure you include its full title.

Published 1 October 2010
Last updated 18 November 2021 + show all updates

  1. Combined separate 'overview' and 'further information' leaflets into one publication. Changed 'overview' to 'summary' and 'further information' to 'detailed information'.

  2. Updated in line with clinical guidance.

  3. Converted attachment from PDF to HTML.

  4. One of a suite of updated inherited metabolic diseases leaflets.

  5. First published.

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