Guidance

Hepatitis C national register

The register helps inform the natural history of hepatitis C (HCV) infection in the UK with patient data.

Documents

HCV national register: registration form

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HCV national register: follow-up form

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HCV national register: patient information sheet

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HCV national register: parent information sheet

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HCV national register: patient consent form

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HCV national register: parent consent form

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HCV national register: access to data

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Detail

The register is based at Public Health England in London.

A multidisciplinary team, under the guidance of an expert steering group, undertakes the work of the register.

The register contains anonymised data for one of the largest cohorts of patients in Europe who have acquired their hepatitis C infections on a known date. Most cases are transfusion recipients who were traced during the national HCV lookback programme.

Systematic collection of clinical data using standardised report forms allows us to gather data consistently about every 2 years. These data, along with mortality data for cases and controls, allow us to establish the clinical course of HCV infection, and investigate risk factors for progressive disease.

Ongoing recruitment of paediatric and other HCV infections with known dates of acquisition enables us to inform and compare the natural history of HCV infection in other important patient groups.

See national register of HCV: published papers on the health protection website archive.

See HCV national register: clinicians bulletin on the health protection website archive.

Immunisation, hepatitis and blood safety

Public Health England
61 Colindale Avenue
London
NW9 5EQ

Coordinators: Helen Harris, Annastella Costella