Policy paper

Consumer and patient experience of genetics concordat invited

Consumers and patient groups are invited to submit evidence of their experience of how the Concordat on Genetics and Insurance is working in practice, as part of new arrangements to ensure continued monitoring of the operation of the Concordat.

This was published under the 2010 to 2015 Conservative and Liberal Democrat coalition government

Documents

the form to record any complaints you have made and their outcomes (PDF, 27K)

This file may not be suitable for users of assistive technology. Request an accessible format.

If you use assistive technology (such as a screen reader) and need a version of this document in a more accessible format, please email publications@dh.gsi.gov.uk . Please tell us what format you need. It will help us if you say what assistive technology you use.

Details

The evidence might include, for example, records of any complaints made to insurance companies regarding breaches of the Concordat.

The Concordat and Moratorium on Genetics and Insurance is an agreement between the Government and the Association of British Insurers.

It provides a policy framework for the use of predictive genetic test information by insurers and contains a voluntary moratorium on insurers’ use of predictive genetic test results.

The Concordat was reviewed in 2011 and has been extended to 2017.

All available evidence will be used to inform the next review of the Concordat, which is scheduled for 2014.

You can email the form, or any other evidence on the operation of the Concordat, to concordat@dh.gsi.gov.uk

Published 10 July 2012