Policy paper

Cancer survivors give their views in pilot survey

This publication was published under the 2010 to 2015 Conservative and Liberal Democrat coalition government

Results from pilot survey in 2011 of almost 5000 survivors of prostate, breast, bowel and colorectal cancer and non-Hodgkin’s lymphoma.

Documents

The quality of life of cancer survivors in england

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Cancer survivorship patient reported outcome measures (PROMS) pilot survey

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Cancer survivorship patient reported outcome measures (PROMS) pilot survey: accessible version

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Detail

This is published alongside the second annual report on improving cancer outcomes.

As well as improving survival rates, we need to respond to the challenge of supporting more people to live well, beyond cancer, if England is to be among the best in Europe at tackling cancer.

Many cancer survivors speak of feelings of isolation and abandonment. They also need support with the effects of treatment, such as incontinence, which can have a profound impact on their quality of life.

People with specific cancers were asked about their quality of life after diagnosis.

The report provides a rich source of information about what cancer survivors need and a model for further patient surveys.

A year after their first diagnosis, for example, respondents reported how their quality of life had been affected:

  • 47% feared their cancer could come back
  • 27% were afraid of dying
  • increased physical activity was associated with a better quality of life

The report summarises the results from a pilot survey, sent to a sample of almost 5000 survivors of prostate, breast, bowel and colorectal cancer and non-Hodgkin’s lymphoma, in the summer of 2011, and collected using Patient Reported Outcome Measures.

The report is aimed at commissioners, commissioning support units and providers to help them understand how to continuously improve after-care for cancer survivors.