Late last year, the Minister committed to appoint an independent chair for the review, following a roundtable on theLCPwith a wide range of experts and representatives of patients and their families.
Julia Neuberger, who is Senior Rabbi at the West London Synagogue and former Chief Executive of the King’s Fund, will oversee the review, which will be examining various elements of theLCP, including:
- the experience and opinions of patients and families;
- the experience and opinions of health professionals;
- hospital complaints;
- local payments made to hospitals in respect of theLCP; and
- the literature about benefits and limitations of the Liverpool Care Pathway.
The review panel will be made up of a range of interested parties, and will be chaired by Baroness Neuberger. They will hold a number of evidence sessions, invite written submissions, as well as hosting a session dedicated exclusively to hearing personal stories from families.
Following this work, the review will make recommendations about what, if any, changes are needed to improve care, to ensure that patients are always treated with dignity and that, wherever possible, they are involved in decisions about their care, and that carers and families are always involved in the decision-making process.
Norman Lamb said:
Everyone wants their loved ones’ final hours to be as pain free and dignified as possible.
Experts agree the Liverpool Care Pathway, if applied properly, can play a vital role in achieving this aim, but, as we have seen, there have been too many cases where patients or their families were ignored or not properly involved in decisions. This is simply unacceptable.
I have also been extremely concerned about what loved ones have said regarding the withdrawal of food and fluids. It is so important for relatives to have complete confidence in the care that a loved one is receiving.
I am delighted that Baroness Neuberger has agreed to chair the Review. End of life is a culturally, medically and spiritually sensitive area and her unique knowledge and experience make her the ideal person to lead this work.
Baroness Neuberger said:
I am happy to accept the challenge that the Minister has offered me. How we care for people at the end of their lives is a reflection of our society’s values and civilisation. At its best, Britain leads the world in end-of-life care, but it is not always prefect, and we need to work hard to get it right for everyone, providing the personal care individuals and their families both want and need.
Baroness Neuberger will be inviting a small panel of independent experts to support the work of the review. It will report to Ministers and to the NHS Commissioning Board in the summer.
The Minister added:
In the meantime, pending the outcome of the Review, I want to reinforce the absolute importance of patients (wherever possible) and families and carers being involved in decisions about their care and treatment.
I should also reiterate my clear view that incentive payments to hospitals should only be made where it can be shown that they demonstrably improve care.
**Independent review of the use and experience of the Liverpool Care Pathway
***Terms of Reference
The Liverpool Care Pathway for Dying Patients (LCP) is internationally recognised as best practice in care in the final days and hours of life, and is recommended in the Department’s End of Life Care Strategy. However, over recent weeks and months theLCP has been subjected to repeated media attacks, quoting poor care for people at the end of life and making a number of serious accusations about the pathway and its implementation. Accusations include that:
- it is a form of euthanasia;
- it is a pathway to death and a self-fulfilling prophecy;
- it deprives people of food and fluids;
- it sedates people into unconsciousness;
- it hastens death because the average length of time on it is 29 hours;
- people linger in misery for weeks on theLCPbecause food and fluids have been withdrawn;
- doctors select people to be killed on theLCPwithout telling them or their relatives;
- it is used to clear beds and save money;
- hospitals are bribed to use it.
The LCPis clear about the importance of communication. It is designed to support professionals, who may not be palliative care specialists, to provide personalised, hospice style-care. It encourages staff to anticipate the treatment an individual may need, and to be ready to provide it swiftly, but it does not dictate the treatment anyone should receive. The issue is therefore not about the merits of the LCPitself, but about how it is being used. This reporting suggests that it is not always being used as intended. In order to restore confidence in NHS care - and in particular, hospital care - of dying people, this review focus on how the LCPis being used by professionals and how it is experienced by patients and families. The focus will be on the use of theLCP model rather than on re-evaluating the model itself.
The review will:
- examine systematically the experience of patients and families of the use of the Liverpool Care Pathway;
- examine the experience and opinions of health professionals about the use of the Liverpool Care Pathway;
- examine hospital complaints about end of life care and in particular those about the Liverpool Care Pathway;
- review the literature about the Liverpool Care Pathway in practice;
- consider the role of financial incentives in this area; and
- make recommendations about what steps can be taken to:
- improve care;
- ensure that patients are always treated with dignity and are involved in decisions about their care wherever possible;
- ensure that carers and families are always properly involved in the decision-making process; and
- restore public confidence.
The review will report to Department of Health Ministers and the NHS Commissioning Board with its conclusions and recommendations by summer of 2013.