Consultation outcome

How should we engage and involve patients and the public in our work

This consultation has concluded

Download the full outcome

Response: What we will do differently

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Detail of outcome

We have published our response to the consultation

Feedback received

What you told us

What you told us

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List of organisations that responded to the consultation

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Detail of feedback received

We have published a detailed breakdown of the responses we received, and a list of those organisations who took part in the consultation.

Original consultation

Summary

Work is ongoing to address the comments and feedback from respondents to the consultation. Publication of our report on the consultation has been delayed in light of the Agency’s response during the ongoing coronavirus situation.

This consultation ran from
to

Consultation description

We want to adopt a more systematic approach to listening to and involving patients – ensuring that the patient voice is heard when safety issues, concerning medicines or medical devices, are identified and in the licensing of new medicines.

We also plan to do more to communicate about who we are and the results of our work.

We would like to hear from:

  • patients
  • patient group representatives
  • carers
  • healthcare professionals

By taking part you will help us identify what our priorities should be for patient engagement and involvement in the future.

Engagement activities

To support the consultation we held engagement events in September and October in Belfast, Cardiff, Glasgow and London.

Documents

Published 15 July 2019
Last updated 15 June 2020 + show all updates
  1. Published the feedback we received to the consultation, a list of those organisations who took part and our response.

  2. Summary updated to explain why the outcomes of the consultation have not yet been published.

  3. We have updated the details for the London event

  4. Updated details of the London event.

  5. Added a new Word document version of the consultation response questionnaire, specifically for organisations to complete.

  6. Removal of details of the Glasgow event.

  7. Removed Cardiff event information.

  8. Uploaded Word document version of consultation questionnaire in Welsh

  9. First published.