Skip to main content
Guidance

Edwards' syndrome (T18): information for parents

This information is for parents whose baby may have Edwards' syndrome. It can help them talk through the next stages of their care with health professionals.

Updates to this page

From:
NHS England
Published:
1 April 2012
Last updated:
6 March 2026
Show all updates

  1. Removed reference to printing leaflets. Added information on requesting other formats.

  2. Added list of translations to the details.

  3. Added translations for Arabic, Bengali, Chinese, Gujarati, Polish, Portuguese, Punjabi, Romanian, Spanish and Urdu

  4. Changed lead organisation to NHS England. Removed reference to screening helpdesk. Removed references to PHE. Added statements on data usage and opt-out.

  5. Converted guidance from PDF to HTML and made some slight changes to terminology.

  6. First published.

Applies to England

Documents

Edwards' syndrome: information for parents

HTML

Details

Edwards’ syndrome is a condition screened for at the 20-week scan as part of the NHS Fetal Anomaly Screening Programme (FASP). This document includes information for parents about:

  • what the condition is
  • follow-up tests and appointments
  • what the outlook for the baby is
  • what happens next
  • how likely it is to happen in future pregnancies
  • where more support and information is available

The information is available in 10 other languages: Arabic, Bengali, Chinese, Gujarati, Polish, Portuguese, Punjabi, Romanian, Spanish, and Urdu.

To request another format, you can phone 0300 311 22 33 or email england.contactus@nhs.net.

Sign up for emails or print this page

Related content