Guidance

CJD: public health action following report of new case or person at increased risk

Creutzfeldt-Jakob Disease (CJD) incident management guidance document and forms for trusts, hospitals and local health protection teams.

Documents

Public health action following a report of a new case of CJD or a person at increased risk of CJD

Form 2A: high infectivity tissues (PDF)

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Form 2A: high infectivity tissues (Word)

Form 2B: medium infectivity tissues (PDF)

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Form 2B: medium infectivity tissues (Word)

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Form 3: incident report (PDF)

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Form 3: incident report (Word)

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Form 4: enhanced surveillance (PDF)

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Form 4: enhanced surveillance (Word)

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Detail

Responsibility for investigating, assessing and managing CJD incidents (and where appropriate notifying patients) rests with local trusts, health boards and health protection teams. This guidance document is intended for use by trusts, hospitals, local health protection teams and health boards. It provides advice and information for the public health follow up required following a report of:

  • a newly diagnosed or suspected case of CJD
  • a person at increased risk of CJD
  • a surgical procedure carried out on a patient with CJD or at increased risk of CJD where Transmissible spongiform encephalopathy (TSE) infection control guidelines were not followed

The above forms accompany the guidance document and should be used to record details of investigations, as directed within the document.