Independent report
Child-family screening for familial hypercholesterolemia: ethical issues
An analysis of the ethical issues raised by child-family cascade screening for familial hypercholesterolemia (FH).
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In 2020, the UK National Screening Committee (UK NSC) set up an ethics task group to carry out an analysis of the ethical issues raised by child-family cascade screening for familial hypercholesterolemia (FH). The group included members with expertise in ethics, paediatrics, clinical genetics, sociology, primary care and public health and a patient representative.
Published 10 February 2022