Open consultation

Privacy Notice for Infected Blood Consultation

Published 30 October 2025

Your Data

Purpose

This consultation collects personal data and opinions from members of the public to inform public policy development. 

We will use your data to ascertain your views about the policy proposals and issues of public interest raised in this consultation. Your data will also be used to evaluate the effectiveness of the consultation process, by considering the sector, individual and organisational response by volume, area and perspective.

The data

This consultation requests some limited personal data to identify: the nature of a person’s interest in the Infected Blood Inquiry and, where relevant, basic health information relating to a person’s infection type. We will only process your IP address if it is necessary for the technical running of the consultation. Personal opinions are requested throughout the consultation.

We may also process additional biographical information about respondents or third parties where it is volunteered, and this may also include sensitive data. The sensitive personal data that we might process includes: racial or ethnic origin; religious or philosophical beliefs; health; data concerning a person’s sex life; and data concerning a person’s sexual orientation.

Legal basis of processing

The legal basis for processing your personal data is that it is necessary for the performance of a task carried out in the public interest or in the exercise of official authority vested in the data controller. In this case that is consulting on policies or proposals, or obtaining opinion data, in order to develop good effective policies.

Sensitive personal data is personal data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, data concerning health or data concerning a natural person’s sex life or sexual orientation.

The legal basis for processing your sensitive personal data is that it is necessary for reasons of  substantial public interest for the exercise of a function of the Crown, a Minister of the Crown, or a government department. The function is consulting on policies or proposals, or obtaining opinion data, in order to develop good effective policies.

Recipients

Where individuals submit responses, we may publish those responses anonymously.

Where appropriate, responses submitted by organisations or representatives of organisations will be published in full.

The data may be shared with officials within other public bodies in order to help develop policy.

As your personal data will be stored on our IT infrastructure it will be  processed by our data processors who provide consultation management, email, and document management and storage services.

This consultation uses a third party to help us collect and process consultation responses and, as such your data will be shared with them. All data processors are bound by contracts and can only process data under our instructions.

We may share your personal data where required to be law, for example in relation to a request made under the Freedom of Information Act 2000. But we will only do this where it would not breach your rights under data protection law.

Retention

Published information will generally be retained indefinitely on the basis that the information is of historic value. This would include, for example, personal data about representatives of organisations.

Personal data provided in response to this consultation will be retained in identifiable form for 12 months after the consultation has concluded. 

Your rights

• You have the right to request information about how your personal data are processed, and to request a copy of that personal data.
• You have the right to request that any inaccuracies in your personal data are rectified without delay.
• You have the right to request that any incomplete personal data are completed, including by means of a supplementary statement.
• You have the right to request that your personal data are erased if there is no longer a justification for them to be processed.
• You have the right in certain circumstances (for example, where accuracy is contested) to request that the processing of your personal data is restricted.
• You have the right to object to the processing of your personal data.

For more details about your information rights, please see the Information Commissioner’s Office website www.ico.org.uk Your Data Matters.

International Transfers

As your personal data is stored on our IT infrastructure, and is processed by our data processors, it may be transferred and stored securely outside the UK. Where that is the case it will be subject to equivalent legal protection through an adequacy decision, or an International Data Transfer Agreement.

Contact Details

The data controller for your personal data is the Cabinet Office. The contact details for the data controller are:

Cabinet Office
70 Whitehall
London
SW1A 2AS

or 0207 276 1234, or Contact the Cabinet Office .

The contact details for the data controller’s Data Protection Officer are: dpo@cabinetoffice.gov.uk.

The Data Protection Officer provides independent advice and monitoring of Cabinet Office’s use of personal information.

Complaints

If you consider that your personal data has been misused or mishandled, you may make a complaint to the Information Commissioner, who is an independent regulator.

The Information Commissioner can be contacted at:

Information Commissioner’s Office
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF

or 0303 123 1113, or icocasework@ico.org.uk.

Any complaint to the Information Commissioner is without prejudice to your right to seek redress through the courts.