Correspondence

IBCA Community Update, 07 May, 2026 (HTML)

Published 7 May 2026

Hello, and welcome to your community update. 

This newsletter includes:

• an update on compensation claims
• information about IBCA’s May Board meeting
• an update on opening registration for deceased affected claims
• guidance about cirrhosis.

Thank you for your feedback and questions. They help us improve this update. You can get in touch by emailing ibcaenquiries@ibca.org.uk or on Facebook or X (formerly Twitter).

An update on compensation claims

As of 5 May 2026, a total of 4,260 people have been asked to start their claim, and of this number, 3,923 people have started the claim process. 

3,232 people have had their compensation paid, totalling just over £2.10 billion.

To date, we have received 18,530 registrations of intent to make a compensation claim. This figure represents individual registrations, not unique people or claims. This is because some people may have registered more than once. 

Following community feedback asking for more detailed data, we’re including breakdowns for each group showing how many people have been asked to start their claim and how many have done so. Where fewer than 10 people have been contacted or started the claim process in a reporting period, we don’t report the increase to protect people’s privacy and make sure no one can be identified.

You can see our latest compensation statistics, including registration figures on the IBCA website.

As you can see in the latest statistics, in the last fortnight we’ve brought in 246 more claims for those who are living with infection and have never been compensated. We will continue to bring in these larger numbers of claims over the coming weeks for this group.

We’re moving through this group of claims more quickly because they are the most similar to the previous group we have already learnt from (those infected and registered with a support scheme). This means there are fewer changes we need to build into our service when we bring these claims in.

We continue to bring in those representing deceased infected claims and those who are affected, but in smaller numbers for now. This is because we are building the claim service to handle these types of claims with confidence, and will open up to larger numbers as soon as we can. 

In this video, Celine McLoughlin, Chief Digital and Information Officer at IBCA, responds to some of your most frequently asked questions about the development of our compensation claim service.

IBCA’s Board meeting this week

The second public Board meeting

Our Board meeting took place on Wednesday, 6 May. The video will be available on our YouTube channel shortly. 

This is part of our commitment to being open and transparent. You can also see the agenda and board papers on our website. 

We apologise for the technical difficulties affecting the sound during the first half of the meeting.

The main items discussed were: 

• a progress update from David Foley
• an update from the Community Advisory Panel Chair, Tim Green
• an update on our financial position
• evidence requirements for making a claim and what we have learnt 
• identification requirements when you start your claim
• our business plan.

You can see more detail on what the Board discussed in this news story.

Opening registration for deceased affected claims

You can now register your intent to claim compensation if you have legal authority to act on behalf of a deceased affected person (or you represent someone with legal authority). This follows the Infected Blood Inquiry recommendation that compensation should not be lost if an affected person dies before receiving it, and should pass to their estate.

An affected person is someone who was the partner, parent, child, sibling or unpaid carer of an infected person.

For an estate to be eligible, the deceased person must have died between 21 May 2024 and 31 March 2031.

To claim compensation, you must be the executor or administrator of their estate, or be in the process of becoming one. This means you have, or will be able to get, a grant of probate or confirmation.

You can also claim if you are acting on behalf of the executor or administrator and have permission to do so.

We can only start your claim if you have, or can get, a grant of probate or confirmation.

Find out more about how to apply for probate (GOV.UK). You can also find out more on our website about the documents you will need to claim for someone who has died.

If you’re unable to register online, or would like help completing your registration, call us on 01414 718 886. We can then arrange for our team to support you.

Update to guidance about cirrhosis 

We have published our latest guidance on reversal of cirrhosis. You can read the full guidance here.

In the past, doctors thought cirrhosis was permanent. Medical experts now know that in some cases, cirrhosis can improve or reverse, but this is still very rare. When it does happen, it usually takes many years, and often follows certain types of medical treatment. Deciding if someone’s cirrhosis has reversed is not straightforward. We cannot confirm reversal based on a single test result. We work with expert clinical advisors who look carefully at all the information available.

If your medical records confirm that you had or probably had cirrhosis caused by your infection, your compensation will not be reduced, even if your liver health improves over time. You would still be paid at infection severity level 3.

If you have already received compensation and think you may have been paid incorrectly, please contact your claim manager and we will review your claim.

Register your intent to claim

If you, or someone you know, could be eligible for infected blood compensation, or if you intend to make an additional claim, you can register your intent to claim online. 

If you have not done so, please register your intent to claim. This ensures we can contact you once we are able to start your claim.

We will also use the information you provide to identify if we need to prioritise your claim, based on recommendations from the Infected Blood Inquiry.

If your circumstances have changed since you registered your intent to claim with IBCA, please get in touch through the contact us page on our website.

Alternative formats 

Do you need this newsletter in a different format? We can provide large print, another language, or other formats. Let us know by:

• calling 0141 726 2397
• emailing ibcaenquiries@ibca.org.uk
• writing to PO Box 384, Newcastle upon Tyne, NE98 1XY.

Protecting you from fraud

We have systems in place to prevent, spot, and deal with fraud. If you get a suspicious message or phone call and want to check if it’s really from IBCA, call us on 0141 726 2397 or email fraud@ibca.org.uk.

If you think someone has defrauded you:

• report it online at Report Fraud or call 0300 123 2040
• in Scotland, call the police on 101
• tell your bank straight away.

If you’re worried about fraud, you can find more information on the Stop! Think Fraud website: stopthinkfraud.campaign.gov.uk.

Find us online

For more information and latest updates from IBCA, you can find us online:

Our website

Facebook

X (formerly Twitter) 

IBCA_CEO X 

YouTube